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If you have been sent a saliva "spitkit", please ensure you return this by 31st March 2024.

Researchers from the UCL Great Ormond Street Institute of Child Health are appealing for adults and children with experience of stammering, or stuttering (past or present) to participate in the UK arm of the Genetics of Stuttering Study.

This research study is part of an international effort to uncover the genes that are involved in stuttering.The study also looks at the lived experience of stammering and its origins. We also ask about strategies and therapies people have used, and outcomes.

About the Study

Find out more about our study, including what we are trying discover, the scientists involved and how you can take part.

About Stuttering

Learn about the signs and symptoms of stuttering, what is known about the causes of stuttering and other useful resources.

Current Research

Find out about the latest in cutting edge stuttering research, as well as other new research from our team.

With thanks to the STAMMA Research Arena for their contribution.

News and Blog

Stuttering persistence and recovery between 4 and 7 years

By Jess Boyce | May 4, 2022

This study was nested within the Early Language in Victoria Study (ELVS), a large longitudinal community cohort based in Melbourne, Australia. The results showed that that 65% of children who stammered at 4 years had recovered by the age of 7. The recovery rate was similar for boys (60.7%) and girls (57.1%).   Who was…

Are children who stutter likely to have different behavioural, emotional and social development?

By Jess Boyce | May 4, 2022

Children who stutter may begin to show impaired behavioural, emotional and social development at early as age 3, and these difficulties are well established in older children who stutter” – McAllister, 2016 This study examined the externalising and internalising behaviours of children who stammer, or stutter, aged 3, 5 and 11 years. The study utilised…

Are children who stutter more anxious than those who don’t?

By Jess Boyce | May 4, 2022

“We found no evidence that … 11 year old children who stutter were more anxious than those who had recovered from stuttering and nonstuttering controls” – Smith et al. 2017 This study examined anxiety and emotional and behavioural functioning in 11 year old children with persistent stammering, or stuttering. Results showed that the 20 individuals…

Contact Us


0207 905 2325


The Genetics of Stuttering Study
Cognitive Neuroscience and Neuropsychiatry Section
UCL Great Ormond Street Institute of Child Health
30 Guilford Street
London WC1N 1EH



Thank you to all participants!