About the Genetics of Stuttering Study

Researchers from University College London's Great Ormond Street Institute of Child Health are appealing for adults and children with experience of stuttering, or stammering (past or present) to participate in the UK arm of the Genetics of Stuttering Study.

The study aims to pinpoint the genes that predispose individuals to stuttering. This could revolutionise future research into the causes, and biology of stuttering. The study also looks at the lived experience of stammering, and therapy people have had. This will help inform how support can be improved in the future.

Recruitment for the UK study is now closed. Thank you to everyone who took part!

Volunteers must:

  • Be aged 5+
  • Currently stutter (or stammer) or have a history of stuttering.

Not based in the UK?

The Genetics of Stuttering study is the UK arm of an international project examining the genetics of stammering / stuttering.

We are also recruiting in a few other countries; please visit your country's site for more information and to sign up:

Australia and New Zealand: https://www.geneticsofstutteringstudy.org.au/

Netherlands and Belgium (Dutch language): http://www.geneticavanstotteren.nl/

If you live elsewhere, you are still very welcome to sign up to our study; however, we may not be able to collect a saliva sample for genetic analysis just yet. Even if you are not able to provide a saliva sample, the information you provide via the questionnaire will still be valuable to our ongoing work to better understand the experiences of people who stutter.

Young businessmen discussing ideas and strategies in office
Students knowing the right answer

Who is co-ordinating this study?

The Genetics of Stuttering Study is the UK arm of an international project (The International Genetics of Stuttering Study), involving 15 key investigators at eight sites in the UK, Australia, New Zealand, the USA and The Netherlands.

The UK arm of the Genetics of Stuttering Study is being co-ordinated by researchers at University College London's Great Ormond Street Institute of Child Health.

The International Genetics of Stuttering Study, is being lead by the Murdoch Children’s Research Institute, WEHI, QIMR Berghofer Medical Research Institute, Griffith University and the Max Planck Institute for Psycholinguistics.


Need more information?

Please see our FAQs page, or email ich.speechlanguage@ucl.ac.uk.

Thank you to all participants!